The South Region of the Huntington’s Disease Society of America (HDSA) will host the Orlando Team Hope Walk on Saturday, October 16th at 10am at Cranes Roost Park. All proceeds support HDSA’s mission to improve the lives of people affected by Huntington’s disease (HD) and their families.
“The park is such a nice place to walk around with our families and friends,” said Karen Milek, Event Coordinator. “It’s a day that we will remember will are not in this fight alone!”
Team Hope is HDSA’s largest national grassroots fundraising event, which takes place in over 100 cities across the U.S. and has raised more than $20 million for HD since its inception in 2007. Thousands of families, friends, co-workers, neighbors, and communities walk together each year to support HDSA’s mission to improve the lives of people affected by HD and their families.
Huntington’s disease is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities usually during their prime working years and has no cure. Every child of a parent with HD has a 50/50 chance of inheriting the faulty gene that causes Huntington’s disease. Today, there are approximately 41,000 symptomatic Americans and 200,000 at-risk of inheriting the disease. In less than 10% of cases, juvenile Huntington’s disease (JHD) affects children & adolescents. JHD usually has a more rapid progression rate than adult onset HD; the earlier the onset, the faster JHD progresses. HD is described as having ALS, Parkinson’s and Alzheimer’s diseases – simultaneously. HD is characterized by a triad of symptoms, including progressive motor dysfunction, behavioral disturbance and cognitive decline.
The Huntington’s Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by HD. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today and hope for tomorrow for people with HD and their families.
For more information about the event, please contact Karen Milek ([email protected]). Online registration and donation can be found at hdsa.org/thworlando.
HDSA’s Team Hope Walk Program is nationally sponsored by Genentech and Teva Pharmaceuticals.? To learn more about Huntington’s disease and the work of the Huntington’s Disease Society of America, visit www.HDSA.org or call 1(800)345-HDSA.
WHAT
Team Hope is HDSA’s largest national grassroots fundraising event. Thousands of families, friends, co workers, neighbors and communities walk together each year to support HDSA’s fight to improve the lives of people affected by HD and their families.
WHO
Contact: Karen Milek
Email Address: [email protected]
WHERE
Cranes Roost Park
274 Cranes Roost Blvd.
Altamonte Springs, FL 32701
WHEN
Saturday, October 16th @ 10:00 AM (EST)
EVENT INFO
All donations go towards HDSA